gastroenterologist visit

I am posting this almost a week later but backdating it to the right day. :)

Ricky saw the gastroenterologist for his quarterly visit. In the interim he did have that overnight ER visit for a near bowel blockage. So the doctor finally suggested that we try something different than the Miralax he's been on for many years (currently at 3x the usual adult dose).

First we are supposed to try Milk of Magnesia, 6 teaspoons once per day. If that doesn't work, we are to try a new med, Amitiza. She gave us samples of it. He will get three pills (8mg each) twice a day.

As of this writing (I am writing this on December 21) the Milk of Magnesia did not help at all. His poops were EXACTLY the same... sporadic and painful. :( I am getting ready to start him on the Amitiza tomorrow. Other CF patients have told me that it works great for them. The only problem we might have is that it's a very expensive new drug that also isn't yet approved for kids. We are lucky (?) to have CCS so hopefully they'll pay for it if the insurance doesn't. There is usually a lot of back and forth before someone finally pays, but we could get lucky. We'll see.