In addition to writing new stuff, I'm going to start importing significant entries from my old blogs. So be sure to check the archives links over to the right, as I'm hoping to put proper retroactive dates on everything...
Sunday, December 23, 2007
12 years ago
Originally posted to my friends-only LiveJournal blog here on November 26, 2004.
On the day after Thanksgiving, 1995, I was admitted to the hospital because my baby was not moving. Shortly after an abnormal ultrasound I was transferred to a hospital with a level 4 NICU and Ricky was born two days later, November 26, 1995, by cesarean section.
The baby (who had no name for several days, having surprised us by coming 7 weeks early) almost immediately had bowel surgery and then spent seven tumultuous weeks in the NICU.
About 10 days into his hospitalization, the genetic tests came back and we learned that our firstborn had cystic fibrosis. It was the beginning of our long journey.
And 9 years ago today it all began.
Note: Now it's actually been 12 years!
On the day after Thanksgiving, 1995, I was admitted to the hospital because my baby was not moving. Shortly after an abnormal ultrasound I was transferred to a hospital with a level 4 NICU and Ricky was born two days later, November 26, 1995, by cesarean section.
The baby (who had no name for several days, having surprised us by coming 7 weeks early) almost immediately had bowel surgery and then spent seven tumultuous weeks in the NICU.
About 10 days into his hospitalization, the genetic tests came back and we learned that our firstborn had cystic fibrosis. It was the beginning of our long journey.
And 9 years ago today it all began.
Note: Now it's actually been 12 years!
the story of a boy
Okay, so this is the initial post in my new "story of a boy" blog.
Ricky is my 12-year old son. He has cystic fibrosis, bipolar disorder NOS, probably PDD-NOS, and various learning and social skills issues.
For a long time I've been thinking about consolidating my blog posts about Ricky that are in various places, into one place. So that's why I'm creating this bog, in order to do that -- and also to write new posts about how things are going with Ricky and what I am learning on this journey.
Perhaps others who stumble onto this blog can learn a little bit about what it's like to parent a child with special needs, battle the education and health systems, and things of that nature.
I wish I had something more witty to say, but for now, there you go.
Ricky is my 12-year old son. He has cystic fibrosis, bipolar disorder NOS, probably PDD-NOS, and various learning and social skills issues.
For a long time I've been thinking about consolidating my blog posts about Ricky that are in various places, into one place. So that's why I'm creating this bog, in order to do that -- and also to write new posts about how things are going with Ricky and what I am learning on this journey.
Perhaps others who stumble onto this blog can learn a little bit about what it's like to parent a child with special needs, battle the education and health systems, and things of that nature.
I wish I had something more witty to say, but for now, there you go.
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