Hi there, just wanted to send a quick update on Ricky.
Ricky's doing great, still growing like a weed, and his lungs are doing
great. He turned 8 on November 26, and November 20 marked a whole year
since he got out of the hospital (yay!!!). Ricky's psych condition
seems to be under control too, and he's been putting on lots of weight partially due to the meds he's on. Extra weight is always good for a kid with CF, so we're happy with it.
Looks like we'll be able to send a new picture of Ricky soon for an
update, as his school photos should be coming to us soon, so you can all see how grown up he is now. His face has filled out and he has a dimple in his chin now, and demanded that his hair be cut short the last time, so he looks so much older than before!
Ricky's doing super well in school, learning lots and consistently
getting "top points" for behavior!
Monday, December 22, 2003
Monday, November 10, 2003
Ricky has had a little cough lately which had me nervous but it's not
too bad. Could definitely be worse. He's been out of the hospital almost a year (will be a year November 20) and I'm hoping we can push it wayyyy past a year. At his last clinic visit he was in the high 80s and 90s for his weight and height percentages, which are remarkable for a kid with CF
too bad. Could definitely be worse. He's been out of the hospital almost a year (will be a year November 20) and I'm hoping we can push it wayyyy past a year. At his last clinic visit he was in the high 80s and 90s for his weight and height percentages, which are remarkable for a kid with CF
Friday, September 12, 2003
Just wanted to pop in and mention that Ricky is doing really well in school. He's really liking it. It's the same school he was at the end of last school year and for summer school, but he seems to have started back refreshed, which is really nice. He did have some behavioral problems there in the summer but luckily this school has permission (from me) to restrain him gently and put him in a quiet room til he calms down.
Anyway, he's so excited about it that he's been doing his homework at day care rather than waiting til he gets home, which saves us an incredible amount of time (the time spent doing the homework plus the time we usually battle over doing the homework), meaning the boys actually get to bed on time!
When it comes to the cystic fibrosis, Ricky has also been battling a fungus in his lungs (an effect of him being on antibiotics so much) but after a few rounds of prednisone and anti-fungal medication, he is doing pretty well with that.
Anyway, he's so excited about it that he's been doing his homework at day care rather than waiting til he gets home, which saves us an incredible amount of time (the time spent doing the homework plus the time we usually battle over doing the homework), meaning the boys actually get to bed on time!
When it comes to the cystic fibrosis, Ricky has also been battling a fungus in his lungs (an effect of him being on antibiotics so much) but after a few rounds of prednisone and anti-fungal medication, he is doing pretty well with that.
Tuesday, August 5, 2003
Ricky was at the CF clinic today for his 3 month checkup and he is doing great. He's at 90something percentile for height (4'3") and 50something percentile for weight (60.5 lb.). His lungs sounded great. His oxygen saturation was at 96% and he had his best pulmonary function test ever. Great news all around. We're supposed to stuff more calories into him (as always!) in the way of Ensure Plus shakes.
Since April Ricky has been going to a private school for kids with
learning difficulties and he's been doing great there. He is just
about to finish summer school and then he will be in second grade
starting at the end of this month.
Since April Ricky has been going to a private school for kids with
learning difficulties and he's been doing great there. He is just
about to finish summer school and then he will be in second grade
starting at the end of this month.
Monday, June 30, 2003
I'm coming to the realization that there may be more wrong with Ricky than I first thought... Or even second thought... He is diagnosed with CF and bipolar disorder at this point but I wonder if there's something else going on because we just can't seem to get through to him on proper social boundaries etc. For instance he goes right up to complete strangers and starts conversations etc. And when other kids tease him or whatever he thinks they are his friends. And his peer and sibling relations are just impossible. He just doesn't "get" things that he should get.
His current school placement (a private school that the school district is paying to put him in, since they have no appropriate program) is also awful, so we are exploring (with the help of the school district) other options.
His current school placement (a private school that the school district is paying to put him in, since they have no appropriate program) is also awful, so we are exploring (with the help of the school district) other options.
Saturday, May 10, 2003
Well, I'm afraid I have bad news on Ricky. He is currently suffering
from a fecal impaction. He's being treated with heavy duty laxatives and we're hoping something happens. If it doesn't, he could end up in the hospital in more major treatment.
Ricky hasn't had this problem since he was born. However, ever since he
was in the hospital in November and was put on IV SoluMedrol (steroid)
for his breathing, he has had problems with bloating, distended abdomen,
constipation, and pain. I'm hoping we can get it cleared out now so he
can get back to feeling better.
from a fecal impaction. He's being treated with heavy duty laxatives and we're hoping something happens. If it doesn't, he could end up in the hospital in more major treatment.
Ricky hasn't had this problem since he was born. However, ever since he
was in the hospital in November and was put on IV SoluMedrol (steroid)
for his breathing, he has had problems with bloating, distended abdomen,
constipation, and pain. I'm hoping we can get it cleared out now so he
can get back to feeling better.
Sunday, March 30, 2003
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