Wow, already 10 days since Ricky's endoscopy. Anyway, it went well. We got a call the day before from the surgery center saying that we needed to get to LPCH at 1:15 pm. Shortly thereafter, we heard from the gastro doc's office that Ricky needed pre-procedure paperwork. Uhhh. Eek!!! So I found a lab that was going to be open late enough, and I rushed Ricky there to get his blood drawn.
We got to the hospital early for once, and went to the surgery center. After checking in, we went to an exam room and saw a parade of people for exams, paperwork, a review of Ricky's meds, and port access... A couple of nurses, the gastro doc (who would be doing the procedure), the anesthesiologist... And then finally it was time.
We walked upstairs to the ambulatory procedure unit. I got to go in and watch them put Ricky under. It was funny. The anesthesiologist pushed in Versed, which made Ricky all woozy and loopy. Then she pushed in this white stuff and his eyes rolled right back into his head and he was out. He was holding my hand still but he was OUT.
So I went out to the waiting room, plugged in my poor dying phone, and read my book for a while. He was done fairly quickly. And by the time I got to recovery he was already awake! Usually he takes a long time to wake up.
The doctor let me know that his endoscopy went fine. She did also do a short flexible sigmoidoscopy and she found a polyp in his colon. She even showed me a picture of it. She said she should it was likely just a "juvenile polyp" but that she had biopsied it. If it was just that, he would need a colonoscopy in a year to check on it. If it turned out to be cancerous, we would have to do something sooner, but she was pretty sure that wouldn't happen. Bad news about a colonoscopy is the preparation... Go-Lytely, etc. She figured he'd have to go into the hospital in advance for an NG tube to administer that stuff.
Yesterday I got a call from the doc saying that the biopsy had revealed that the polyp was actually just an ulcer. These are usually caused by constipation, that sort of thing. She emphasized again that he needs to be using his Miralax regularly and taking care of his body. Man up, be a big boy. I agreed and Ricky and I have been talking seriously about this. The good news? No colonoscopy in a year! Hooray! She does want to do an ultrasound soon because of Ricky's belly aches. Just to make sure he doesn't have kidney stones or gallstones going on in there.
More good news, Ricky was at school every single day this week, although one day I did have to pick him up early because he was so sleepy.
We also had his triennial IEP and he had extensive testing done. His eligibility designations were changed from Other Health Impaired (CF) and Severe Emotional Disturbance to OHI and Learning Disability. It was nice to hear that the SED is gone... But on the other hand this newly diagnosed learning disability (in mathematics) is sad to hear about. But at least now he can be getting some help with that. He was also found to be deficient in a few other areas, including reading comprehension.
It was also suggested that Ricky be considered for a course at another local high school in our district where he would learn life and job skills in addition to academic courses. I am going to go tour there soon. Though with us moving soon, and not knowing which district we'll end up in, who knows where he will end up? Ugh.
Ricky's dad had his blood drawn a few weeks ago for the duplication in the seventh chromosome. Finally! We waited a long time for the prison doctor to get off his butt and order the test. Soon we will know if Rick also carries that mutation. One way or another Ricky will eventually have other testing for other stuff like connective tissue disorders.
Also went back for the twice-yearly neuro appointment. Since he's been doing so well, I asked whether he could be taken off of the Topamax, since it makes him so dopey and sleepy. The neurologist agreed that we could start backing off slowly on it and to immediately call if he had seizure activity or other adverse events. So, yay. :)
Guess that is it for now. Goodnight!!!
Blog of Rebekah, mom of Ricky, 17 years old. Ricky has cystic fibrosis, bipolar disorder NOS, multiple learning issues, Asperger's Syndrome, a seizure disorder, and a connective tissue disorder.
Showing posts with label neurology. Show all posts
Showing posts with label neurology. Show all posts
Friday, April 29, 2011
Thursday, April 29, 2010
Long-overdue update!
So, what's been going on with Ricky, you might ask? :)
Lots!!! Where do I start? Well, his cardiology appointment started with an ultrasound of his heart. It still showed a dilation of the ascending aorta, just like a year ago. The cardiologist let us know that it had not changed in size from a year ago. She drew a picture of the heart and its arteries and veins and explained that most likely this would never cause Ricky problems. On the other hand, this sort of defect is almost never found in a child who does not have a syndrome of some type.
And in that department, a couple of weeks back I got word from the genetic counselor that the first genetic test, which was a long shot anyhow, had come back negative. This week, I got a call from her about the other test we were waiting for, a genetic array. This time, an abnormality was found. Ricky has extra genetic material (known as a duplication) on one part of chromosome 11. We are not sure yet what this means -- in truth, the field of genetics is really still in its infancy. The next step is for them to test my DNA (they already took blood when they took Ricky's 2 months ago) to see if I have this too, and if not, they'll want to test the boys' dad. He has offered to be cooperative with medical stuff, so we shall see (if it comes up). On the other hand, from what I have read online, many times these sorts of defects happen spontaneously during or just before conception, and have nothing to do with inheritance. So mysterious!
Ricky has had one ER visit lately; it was due to some pretty severe abdominal pain. It turned out to be nothing, and his lungs look(ed) great. He has been on Dulcolax on a regular basis since then and it seems to help.
He is still having pretty bad dizzy spells. I am so frustrated with the neurologist that I haven't called there in a while. I was supposed to call the nurse to tell her how we had decided to proceed. I upped Ricky's morning dose of Topamax, which hasn't done a lot, but may have improved things.
Had a recheck with the psychiatrist, mostly to check in, and things are looking good.
I took both boys to their new dental center, which was amazing! Disney Channel, video games, all kinds of fun stuff. Wow. Unfortunately they were unable to work on Ricky's complicated teeth... He needs to have his bicuspids (all four -- adult teeth) removed so his cuspids can come in (I may have that backwards). He needs this stuff done before he can have orthodonture. This dental center felt uncomfortable doing this work (or even cleaning his teeth) given his medical history and all of the meds he is on. They gave me a referral to take him to the dental school at UCSF, where the procedure would be supervised by a physician as well. I am glad they're being careful, but jeeeeez.
School is going okay. He has good and bad days. He has days where he refuses to do work at all. We had his IEP meeting last month and decided on his placement for high school -- it happens to be the same place I went to high school. I need to make an appointment for Ricky and me to go visit the classroom. I met the teacher at the IEP meeting and the program sounds really good.
There have been sibling... Issues. Ricky and Andrew both have limited understanding of what Misty is capable of "getting". She wrecks their stuff, that sort of thing, and they can't figure her out. They think she is being malicious but I honestly believe that at her age (almost 4) she is mostly being... 4. Curious.
Ricky's digestive enzymes, Pancrecarb, have not been approved by the FDA by its digestive enzyme approval deadline (April 28), so the CF clinic staff has been scrambling to get people set up with new enzymes. We have quite a few bottles of Pancrecarb left, but after he runs out he'll be on Creon. We are not sure of the future availability of Pancrecarb, which appears to have a grim outlook. Creon was what Ricky was on from when he was diagnosed to when he was put onto Pancrecarb, so it will probably be okay. It just sucks to have to switch to something else after what he's been on all this time has done so well for him.
His labs also came back with his vitamin D being significantly low, so he's going to have to go onto an extra supplement (besides what is in his multivitamin) for a little while. Don't want him to get rickets! Yow!
So, now we wait to see how things go with the genetic tests. CF-wise, Ricky has been out of the hospital since November and things are looking good. His lung function is great. :)
That's all for now!
Lots!!! Where do I start? Well, his cardiology appointment started with an ultrasound of his heart. It still showed a dilation of the ascending aorta, just like a year ago. The cardiologist let us know that it had not changed in size from a year ago. She drew a picture of the heart and its arteries and veins and explained that most likely this would never cause Ricky problems. On the other hand, this sort of defect is almost never found in a child who does not have a syndrome of some type.
And in that department, a couple of weeks back I got word from the genetic counselor that the first genetic test, which was a long shot anyhow, had come back negative. This week, I got a call from her about the other test we were waiting for, a genetic array. This time, an abnormality was found. Ricky has extra genetic material (known as a duplication) on one part of chromosome 11. We are not sure yet what this means -- in truth, the field of genetics is really still in its infancy. The next step is for them to test my DNA (they already took blood when they took Ricky's 2 months ago) to see if I have this too, and if not, they'll want to test the boys' dad. He has offered to be cooperative with medical stuff, so we shall see (if it comes up). On the other hand, from what I have read online, many times these sorts of defects happen spontaneously during or just before conception, and have nothing to do with inheritance. So mysterious!
Ricky has had one ER visit lately; it was due to some pretty severe abdominal pain. It turned out to be nothing, and his lungs look(ed) great. He has been on Dulcolax on a regular basis since then and it seems to help.
He is still having pretty bad dizzy spells. I am so frustrated with the neurologist that I haven't called there in a while. I was supposed to call the nurse to tell her how we had decided to proceed. I upped Ricky's morning dose of Topamax, which hasn't done a lot, but may have improved things.
Had a recheck with the psychiatrist, mostly to check in, and things are looking good.
I took both boys to their new dental center, which was amazing! Disney Channel, video games, all kinds of fun stuff. Wow. Unfortunately they were unable to work on Ricky's complicated teeth... He needs to have his bicuspids (all four -- adult teeth) removed so his cuspids can come in (I may have that backwards). He needs this stuff done before he can have orthodonture. This dental center felt uncomfortable doing this work (or even cleaning his teeth) given his medical history and all of the meds he is on. They gave me a referral to take him to the dental school at UCSF, where the procedure would be supervised by a physician as well. I am glad they're being careful, but jeeeeez.
School is going okay. He has good and bad days. He has days where he refuses to do work at all. We had his IEP meeting last month and decided on his placement for high school -- it happens to be the same place I went to high school. I need to make an appointment for Ricky and me to go visit the classroom. I met the teacher at the IEP meeting and the program sounds really good.
There have been sibling... Issues. Ricky and Andrew both have limited understanding of what Misty is capable of "getting". She wrecks their stuff, that sort of thing, and they can't figure her out. They think she is being malicious but I honestly believe that at her age (almost 4) she is mostly being... 4. Curious.
Ricky's digestive enzymes, Pancrecarb, have not been approved by the FDA by its digestive enzyme approval deadline (April 28), so the CF clinic staff has been scrambling to get people set up with new enzymes. We have quite a few bottles of Pancrecarb left, but after he runs out he'll be on Creon. We are not sure of the future availability of Pancrecarb, which appears to have a grim outlook. Creon was what Ricky was on from when he was diagnosed to when he was put onto Pancrecarb, so it will probably be okay. It just sucks to have to switch to something else after what he's been on all this time has done so well for him.
His labs also came back with his vitamin D being significantly low, so he's going to have to go onto an extra supplement (besides what is in his multivitamin) for a little while. Don't want him to get rickets! Yow!
So, now we wait to see how things go with the genetic tests. CF-wise, Ricky has been out of the hospital since November and things are looking good. His lung function is great. :)
That's all for now!
Labels:
cardiology,
cystic fibrosis,
genetic testing,
neurology,
psychiatry,
school
Wednesday, March 17, 2010
update - doctor visits
Week before last, Ricky saw the neurologist about his increased fatigue and dizziness on the increased Topamax dose he's been on for a while. The decision was made to reduce the dose back down to what it was before and see what happens.
Ricky had an eventful week last week. On Monday, in addition to a bunch of other labs that he gets done yearly, he had his three hour glucose tolerance test, which ended up being normal, yay. That day he also saw his gastroenterologist and that went well, too.
On Tuesday, we had an eventful day. Ricky saw the endocrinologist, who looked over his other blood tests from the day before. His thyroid level was, as always, borderline low. Most of the other stuff looked normal. He has grown two inches in the past year, and the endocrinologist decided to put off any intervention with regard to his delayed puberty. They want us to come back in a year.
Next he had his yearly full pulmonary function tests. Those went well, and his numbers looked great.
Then Ricky saw the pulmonologist. His weight has flatlined and his growth curve is actually dropping. We're supposed to push lots of weight gain shakes. His lungs sounded great and the doc was pleased with the results of the PFTs. His iron was a bit low too, so we're temporarily decreasing his iron supplement frequency.
Ricky's dizzy spells, meanwhile, have been debilitating now that the Topamax dose has been decreased. Monday he spent much of his school day sleeping off another dizzy spell. So I called the neurologist's nurse to ask what we should do. She called me back to tell me she'd ask the doctor and get back to me. She called back and left a voicemail... I couldn't believe her response. Either we increase the dose back up... Which will make him sleep all day again... Or he just "gets used to the dizziness sensation." Seriously? What kind of a choice is that, exactly? I was so livid I couldn't even call her back to tell her what our decision was (for now, I have not increased the dose). I don't know what to do. Second opinion? Angry voicemail to tell her just what I think of her message?
I've also been playing phone tag with the cardiology clinic. Ricky is supposed to go there for another heart ultrasound with regard to the enlarged aortic valve that the geneticist mentioned (the pulmonologist explained it to us, so now I know a little bit more about what we're looking at).
The aortic valve issue and the dizziness (in this case referred to as dysautonomia) could also be symptoms of Ehlers-Danlos. Of course, he's not going to be tested for that unless the genetic tests we're waiting on come back as normal. And we won't have those results for weeks.
Also made another psychiatrist appointment... It's been a while since Ricky's been to see his psychiatrist.
Things just never get dull around here, eh?
Ricky had an eventful week last week. On Monday, in addition to a bunch of other labs that he gets done yearly, he had his three hour glucose tolerance test, which ended up being normal, yay. That day he also saw his gastroenterologist and that went well, too.
On Tuesday, we had an eventful day. Ricky saw the endocrinologist, who looked over his other blood tests from the day before. His thyroid level was, as always, borderline low. Most of the other stuff looked normal. He has grown two inches in the past year, and the endocrinologist decided to put off any intervention with regard to his delayed puberty. They want us to come back in a year.
Next he had his yearly full pulmonary function tests. Those went well, and his numbers looked great.
Then Ricky saw the pulmonologist. His weight has flatlined and his growth curve is actually dropping. We're supposed to push lots of weight gain shakes. His lungs sounded great and the doc was pleased with the results of the PFTs. His iron was a bit low too, so we're temporarily decreasing his iron supplement frequency.
Ricky's dizzy spells, meanwhile, have been debilitating now that the Topamax dose has been decreased. Monday he spent much of his school day sleeping off another dizzy spell. So I called the neurologist's nurse to ask what we should do. She called me back to tell me she'd ask the doctor and get back to me. She called back and left a voicemail... I couldn't believe her response. Either we increase the dose back up... Which will make him sleep all day again... Or he just "gets used to the dizziness sensation." Seriously? What kind of a choice is that, exactly? I was so livid I couldn't even call her back to tell her what our decision was (for now, I have not increased the dose). I don't know what to do. Second opinion? Angry voicemail to tell her just what I think of her message?
I've also been playing phone tag with the cardiology clinic. Ricky is supposed to go there for another heart ultrasound with regard to the enlarged aortic valve that the geneticist mentioned (the pulmonologist explained it to us, so now I know a little bit more about what we're looking at).
The aortic valve issue and the dizziness (in this case referred to as dysautonomia) could also be symptoms of Ehlers-Danlos. Of course, he's not going to be tested for that unless the genetic tests we're waiting on come back as normal. And we won't have those results for weeks.
Also made another psychiatrist appointment... It's been a while since Ricky's been to see his psychiatrist.
Things just never get dull around here, eh?
Labels:
cystic fibrosis,
dizziness,
dysautonomia,
ehlers-danlos,
endocrinology,
neurology,
psychiatry,
puberty
Wednesday, February 24, 2010
We have a plan.
I called the CF nurse this morning after Ricky woke me up at 5:30am unable to breathe well, and having an upset stomach. I left a message that we needed to come in.
He had a neuro visit scheduled for 1 and the CF nurse called back later and said to come in at 11. So Ricky and I dropped Misty off at day care and headed up to Stanford.
Ricky has lost a little weight and is down to 97 pounds but he's up to 62 inches (5'2"). His oxygen saturation was 98 -- excellent -- and his spirometry was right where it has been for quite some time. His lungs sounded great as well. The doctor asked a lot of questions and, combined with the physical examination, concluded that whatever is going on with him, which is definitely significant, is not pulmonary.
So we had lunch at Taco Bell and then came back for his neurology appointment. First we saw a resident, because Ricky's doctor had been called to the OR. He came later. Both of them did thorough neuro exams on Ricky and apparently he was okay there. The ultimate decision was to back off on the Topamax so that he'd be on his old dose, and see if all of this stuff stops.
Our last appointment of the day was his bone density scan. That was fine... He was very good for it. :)
So I backed off on the Topamax tonight and by tomorrow he'll be on his old dose (25mg two times per day). Hopefully he starts to feel better.
He had a neuro visit scheduled for 1 and the CF nurse called back later and said to come in at 11. So Ricky and I dropped Misty off at day care and headed up to Stanford.
Ricky has lost a little weight and is down to 97 pounds but he's up to 62 inches (5'2"). His oxygen saturation was 98 -- excellent -- and his spirometry was right where it has been for quite some time. His lungs sounded great as well. The doctor asked a lot of questions and, combined with the physical examination, concluded that whatever is going on with him, which is definitely significant, is not pulmonary.
So we had lunch at Taco Bell and then came back for his neurology appointment. First we saw a resident, because Ricky's doctor had been called to the OR. He came later. Both of them did thorough neuro exams on Ricky and apparently he was okay there. The ultimate decision was to back off on the Topamax so that he'd be on his old dose, and see if all of this stuff stops.
Our last appointment of the day was his bone density scan. That was fine... He was very good for it. :)
So I backed off on the Topamax tonight and by tomorrow he'll be on his old dose (25mg two times per day). Hopefully he starts to feel better.
Ricky's sick
For about a week now, Ricky's dizziness has been far more severe (along with periodic fever and chills). He's been sleeping a lot more (like 8+ hours in the middle of the day one day last week!). He's had headaches and stomach aches, and just hasn't been feeling well.
The CF doc prescribed Septra, which I couldn't understand. This was clearly a virus as far as I could tell and the CF nurse could tell.
Well, then, today, Ricky slept all day yet again (he has had at least 4 hours of nap(s) every day since this started) and this evening, even after his breathing treatments, his chest was tight. He said that last night he'd had trouble getting to sleep because his breathing was bad.
Tomorrow he has an appointment with the neurologist and an appointment for his yearly bone density scan. Those are both up at Stanford and I'm going to try to get us there early so we can maybe see someone in the CF clinic. I do not like how quickly this has gone downhill!
The CF doc prescribed Septra, which I couldn't understand. This was clearly a virus as far as I could tell and the CF nurse could tell.
Well, then, today, Ricky slept all day yet again (he has had at least 4 hours of nap(s) every day since this started) and this evening, even after his breathing treatments, his chest was tight. He said that last night he'd had trouble getting to sleep because his breathing was bad.
Tomorrow he has an appointment with the neurologist and an appointment for his yearly bone density scan. Those are both up at Stanford and I'm going to try to get us there early so we can maybe see someone in the CF clinic. I do not like how quickly this has gone downhill!
Monday, January 25, 2010
status quo for now

Wow! It has been a long time since I posted... Over two months!
Just wanted you all to know that Ricky is doing very well. We have had a couple of emergency room visits for CF issues that turned out to be not as serious as we feared, thank goodness.
He still hasn't entered puberty, so we're going to the endocrinologist soon, and we will also be visiting the geneticist again, in March. We are supposed to go there periodically for a chat and further blood tests, since it's suspected he's got something else going on (yeah, like we need something else!) and there are new genetic tests available all the time. Also have a pulmonology appointment coming up, the same day as the endo visit, and he'll also have full PFTs that day. Going to be a very exhausting day.
Unfortunately, Ricky's dizzy spells are back in nearly full force. The neurology nurse gave me the go-ahead to up his dose of Topamax to see if that helps, so I've started the titration process. I hate that these spells are back because they totally incapacitate him and make him miserable.
Things are going well in school. He continues to be a teacher's aide in the office and they all love him there. We are gearing up for the transition to high school (!!!) this fall. I'm not sure yet where he's going to be going, but one of the options is my alma mater! Now that would be weird! Anyhow, we're having the transition IEP meeting in March and I should get more details then.
Keep your fingers crossed that Ricky stays healthy through the winter!
Labels:
cystic fibrosis,
genetic testing,
neurology,
puberty,
school
Friday, June 12, 2009
Neurology visit
Went to the neurologist on Wednesday and it went well. It was a pretty quick visit, but the good news is that Dr. O had followed Ricky's case in the hospital in April so I didn't have to go over everything with him again.
He did a neuro exam and then said he wanted to put Ricky on Topamax, a very tiny dose, to see if it helps with the dizzy spells. If it doesn't work, it doesn't work. We'll titrate it up until it does work (if it does) up to 50mg total per day.
He also wants to do a head MRI as well as a specialized MRI that looks at the blood vessels in the head to see if there is a problem there. I mentioned that the endocrinologist might be wanting to do a CT of the pituitary gland (it's something we were going to discuss at his appointment later this month) and he said he'd add that on.
I Twittered about the Topamax and got a number of responses from people who have been on it for various things. The terms like "dopamax" and talk of appetite suppression (the last thing Ricky needs) and mood swings worried me... So today I left a message for the neurology service and a nurse practitioner called me back. She said that the effects like those are from very LARGE doses, and Ricky will be on a very, very small dose. So... I think we are going to go ahead and try it.
Today was Ricky's last day of school. I guess it was a busy one because this afternoon and evening he was very tired and grumpy. :P Starting tomorrow he'll be off for a few weeks until he starts summer school.
Guess that's it for now!
He did a neuro exam and then said he wanted to put Ricky on Topamax, a very tiny dose, to see if it helps with the dizzy spells. If it doesn't work, it doesn't work. We'll titrate it up until it does work (if it does) up to 50mg total per day.
He also wants to do a head MRI as well as a specialized MRI that looks at the blood vessels in the head to see if there is a problem there. I mentioned that the endocrinologist might be wanting to do a CT of the pituitary gland (it's something we were going to discuss at his appointment later this month) and he said he'd add that on.
I Twittered about the Topamax and got a number of responses from people who have been on it for various things. The terms like "dopamax" and talk of appetite suppression (the last thing Ricky needs) and mood swings worried me... So today I left a message for the neurology service and a nurse practitioner called me back. She said that the effects like those are from very LARGE doses, and Ricky will be on a very, very small dose. So... I think we are going to go ahead and try it.
Today was Ricky's last day of school. I guess it was a busy one because this afternoon and evening he was very tired and grumpy. :P Starting tomorrow he'll be off for a few weeks until he starts summer school.
Guess that's it for now!
Tuesday, March 17, 2009
Ricky's ENT visit
I just wrote about Ricky's visit in an email and it came out so well that I thought I'd copy it here rather than type it all over again!
We went to the ENT yesterday. I took a copy of the audiology report with me, and it's a good thing I did since they didn't have their copy handy.
Anyway, the resident did a few tests on Ricky, after hearing what the problem was. One was blowing air into Ricky's ears to see if that made him dizzy, and he then had him lay down and turn his head this way and that to see if that made him dizzy. None of that made him dizzy.
He and the attending ENT both think that it could be one of three things:
1. Migraines;
2. A heart arrhythmia of some kind; or
3. A problem from his CF that causes him to not have his blood oxygenated efficiently (doubtful because his CF is not that bad -- I think that's more of an endstage thing -- but who knows).
They also scoped his nose/sinuses because that is what he's usually seen by ENT for -- chronic sinusitis. No polyps in there.
They are deferring us to neuro (thankfully we finally got the authorization and have an appointment in April), and if the neuro exam is normal they suggest that the pediatrician refer us to a cardiologist, possibly to have him wear a Holter monitor for 24 hours or something along those lines.
I'm feeling a bit discouraged because I was hoping we'd get some answers. But I can wait til next month. Maybe the neurologist will have some answers for us.
We went to the ENT yesterday. I took a copy of the audiology report with me, and it's a good thing I did since they didn't have their copy handy.
Anyway, the resident did a few tests on Ricky, after hearing what the problem was. One was blowing air into Ricky's ears to see if that made him dizzy, and he then had him lay down and turn his head this way and that to see if that made him dizzy. None of that made him dizzy.
He and the attending ENT both think that it could be one of three things:
1. Migraines;
2. A heart arrhythmia of some kind; or
3. A problem from his CF that causes him to not have his blood oxygenated efficiently (doubtful because his CF is not that bad -- I think that's more of an endstage thing -- but who knows).
They also scoped his nose/sinuses because that is what he's usually seen by ENT for -- chronic sinusitis. No polyps in there.
They are deferring us to neuro (thankfully we finally got the authorization and have an appointment in April), and if the neuro exam is normal they suggest that the pediatrician refer us to a cardiologist, possibly to have him wear a Holter monitor for 24 hours or something along those lines.
I'm feeling a bit discouraged because I was hoping we'd get some answers. But I can wait til next month. Maybe the neurologist will have some answers for us.
Monday, February 16, 2009
doctors
Week before last, Ricky visited the new pediatrician for the first time. She is great! She knows a bit about CF and is willing to learn more. So, yay.
This past week, Ricky was tripped (someone stepped on his shoelaces) in PE and fell on his knee and had his left thumb bend back. Took him back to the pediatrician's office and saw one of her partners; an x-ray confirmed that the thumb and small bones around it were not broken... But they were pretty sure that the thumb was sprained. So he wore an ace bandage for 5 days to immobilize it.
Ricky was supposed to go to the neurologist tomorrow, but I got a call today (yes Sunday) and found out that this doc doesn't take Healthy Families, darn it... so we had to cancel it. He'll have to see a neuro doc at Stanford where most of his other docs are. But it will take some time. Sigh. Good old insurance...
That's it for now. :)
This past week, Ricky was tripped (someone stepped on his shoelaces) in PE and fell on his knee and had his left thumb bend back. Took him back to the pediatrician's office and saw one of her partners; an x-ray confirmed that the thumb and small bones around it were not broken... But they were pretty sure that the thumb was sprained. So he wore an ace bandage for 5 days to immobilize it.
Ricky was supposed to go to the neurologist tomorrow, but I got a call today (yes Sunday) and found out that this doc doesn't take Healthy Families, darn it... so we had to cancel it. He'll have to see a neuro doc at Stanford where most of his other docs are. But it will take some time. Sigh. Good old insurance...
That's it for now. :)
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