Ricky, my soccer hero
Originally uploaded by Beckerbuns
Ricky had his last day of soccer for the spring on Sunday. He played hard and scored multiple goals. He was only able to play so well the last couple of weeks because he was sick for so long. :( Hopefully in the fall we will have better luck.
If you would like to see the rest of Ricky's pictures and videos from this season of soccer, they are here.
So, tomorrow is Ricky's long-awaited neurologist visit at Stanford. We used to have a pedi neuro in San Jose but he's not on the newest insurance and the docs at Stanford are. This one is highly regarded by Ricky's pulmonologist so he should be worth the wait.
Ricky has continued to have dizzy spells and spells of extreme fatigue. I hope that the neurologist has some ideas, because everybody else has tapped out their ideas. I found the CD of Ricky's brain MRI from two and a half years ago. I am hoping that this might help the doc, though he might want to do an MRI that shows different stuff. Not sure. I hope he will have had the time to review all of Ricky's test results from the hospital stay (echocardiogram, video EEG, etc.) because he had almost a full neuro workup. There isn't much left.
We saw the psychiatrist yesterday. Which reminds me, we finally got Ricky's meds late last week. It was a close call. He was actually out of meds and I was getting desperate, crying in desperation and wanting to throw the phone every time I had another frustrating conversation with the insurance company or doctor's office. Finally what it took was Dr. J, Ricky's psychiatrist, CALLING the insurance company to see what the heck they wanted from him. He had faxed the prior authorization forms repeatedly.
And finally, we are in the process of trying to get a new chest therapy vest from Respirtech. They make a newer, more technologically advanced, streamlined vest machine that can be programmed. (!!!) It is also smaller. We have the giant mondo original vest from Hill Rom and it is completely impossible (well, mostly) to take it on vacation. Hopefully we get the Respirtech vest (depends on CCS and insurance) because it would be great to have on vacations. Other methods of airway clearance just don't work as well for Ricky.
Ricky's last day of school is this Thursday. He has a little break and then has summer school during July. In August we (the three kids and me) are planning on going on a road trip to Oregon and Washington. We'll visit Dave's (Misty's dad) parents, do the tourist thing in Seattle, and then visit Kat in eastern Washington. We are really looking forward to the trip.
Guess that's it for now! Thank you all for keeping Ricky in your thoughts.
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