You haven't heard from me in a while. Ricky actually just finished up a round of antibiotics; week before last I took him to the pediatrician, and then the CF doc a couple of days later, because he was complaining again of shortness of breath and tightness. He has also intermittently been complaining of pain when he breathes in. His lung function was only slightly decreased when we saw the CF doc, but he was clearly grunting and working harder to breathe at home and when out and about. Kid just can't get a break.
So he just finished taking a round of Septra and is back on inhaled Tobi antibiotics.
Today he had another dizzy spell incident. They apparently come several times a day, but then several times a week we get a BAD one. This one came when he was showering this morning. He said everything went black and he had to sit down. :( It was bad enough that on the way to Costco in the car he dozed off and on and just lay motionless. At Costco I had to get a wheelchair to wheel him around in (my mom met us there and she pushed a cart).
Something has to change. We need to get to the bottom of this! He has an audiology appointment coming up (to test the auditory nerves and see if he's suffering from vestibular nerve damage from antibiotics, which could cause the dizziness) and also a neurology recheck. These are both next month I believe. I'm truly at my wit's end with all of this stuff. It must be miserable living life like this!
Love you, my Ricky boy...
2 comments:
Thinking of you
Thanks for visiting my blog, and this is my first visit to yours. It sounds like you have a lot on your plate and I can definitely relate to that. You need a break and I hope you get one!
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