Update

Hi everyone! I'm happy to say that the past few days have been uneventful. On Tuesday, people at the hospital became concerned that Ricky was getting backed up, like during the last two hospitalizations. They upped his Miralax to 4x a day (!) and started him on mag citrate. On Thursday, the doctor said he had one more day to unplug or he would have to get an NG tube. I spoke with her at length about my concern that being restricted to his room, as all CF patients are now, has caused him to get backed up every time he's been in this year. She really listened to me and she wrote orders for a physical therapist to come work with him.

FINALLY, on Friday things, well, improved. He was officially out of danger. It was also clear that he had started to feel better. Yay!!! The plan for discharge became official: He will have spirometry done on Monday and come home if he has improved. That will have given him a full week of antibiotics and he might come home on oral antibiotics.

Friday night, Ricky got angry when he was woke up to take his meds. In the end, he had TV, his DSi, the phone, and his Halloween candy taken away from him. Today he started cooperating again and he got everything back. Whew!

Friday and today Ricky and I went for a walk around the roof (the only place he's allowed to go outside of his room). Sunday I'll see him for a couple of hours and Monday I'll go hang out with him til he gets to come home. Yay! I need to remember to remind him that he kept himself out of danger by following directions, taking his Miralax, etc. He did well!!