Ricky is having a sleep study tonight. This one is for clinical research. He's happy that he'll be getting $100 plus a gift card, but he also knows it's important that he'll be helping scientists to learn about how sleep is affected by cystic fibrosis. So, yeah, awesome.
We had to get here at 6:00, two hours before his expected bedtime, but by 6:30 he was already getting sleepy and asking if he could sit down. That's my boy, always a great sleeper. He was all hooked up and nodding off by 7:30, and now I'm in my separate little bedroom, which is pretty nice, with a double bed and Ikea furniture... A mirror opposite of the room Ricky is in.
Ricky has been coughing more lately. We are a few months short of the two year mark since his last hospitalization. I know it's inevitable that he'll end up in there again one way or another, but I hope it's not soon.
Okay, I am off to try to sleep myself. I can't find my headphones so I can't listen to my iPod, and somehow the battery on my Nook is dead even though I haven't been using it. But I have an actual physical book I can read, Breathing for a Living, by Laura Rothenberg, an adult with CF. Fitting! A week ago I saw the Bay Area premiere of "The Power of Two" with Ana Stenzel and Isa Stenzel Byrnes. Guess it's a CF month!
Ttfn.
