On the day after Thanksgiving, 1995, I was admitted to the hospital because my baby was not moving. Shortly after an abnormal ultrasound I was transferred to a hospital with a level 4 NICU and Ricky was born two days later, November 26, 1995, by cesarean section.
The baby (who had no name for several days, having surprised us by coming 7 weeks early) almost immediately had bowel surgery and then spent seven tumultuous weeks in the NICU.
About 10 days into his hospitalization, the genetic tests came back and we learned that our firstborn had cystic fibrosis. It was the beginning of our long journey.
Sixteen years ago it all began.
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